Joost was diagnosed with Motor Neurone Disease in 2010, and given two to five years to live. He is committed to fighting the disease, and determined to enjoy the time he has left. He sat down with Jacquie Beltrao of Sky News for a chat.

You can view the video HERE

Here is a transcript of the interview:

How are you and where are you with this disease?

Well, I’m always well, very positive and trying to fight it.

You’re going out there to raise awareness of this disease?

Ja, we’re going worldwide. An MND person tends to go into hiding. There’s no reason for it. You are still alive. Live your life and have fun.

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