Joost was diagnosed with Motor Neurone Disease in 2010, and given two to five years to live. He is committed to fighting the disease, and determined to enjoy the time he has left. He sat down with Jacquie Beltrao of Sky News for a chat.

You can view the video HERE

Here is a transcript of the interview:

How are you and where are you with this disease?

Well, I’m always well, very positive and trying to fight it.

You’re going out there to raise awareness of this disease?

Ja, we’re going worldwide. An MND person tends to go into hiding. There’s no reason for it. You are still alive. Live your life and have fun.

(more…)

httpv://youtu.be/cYRRAvi3cpw

When the whistle has blown
and the game is on
And your voice is the only
thing we hear

No I won’t be afraid
No I won’t be afraid
Just as long as you stand
Stand by me

So won’t you, won’t you stand by me
Oh stand by me
Stand by me, stand by me, stand by me

Every try that we fight for
We fight for you
For your glory, together, you and me

Raise your hand, raise your voice
Oh give us a cheer
Just as long as you stand
Stand by me

So Bulle, Bulle stand by me
Oh stand by me
Stand by me, stand by me, stand by me
Bulle!

Spies: “We’ll do anything for our fans”